Well, I know we were all excited for this to be the wonderful post where I tell you that I am at zero. But, it is through tears that I inform you.... that
this is not that post. This is the post where I tell you that right at the end my numbers decided to go up!!!!????? That's right... my test came back as a 12! If 8 was obnoxious, well 12 is just unacceptable!
But... it gets worse. Starting next week (monday the 17th) I will be getting daily treatments for five consecutive days. That's right... daily!! And I was getting fed up with the weekly! I will get a week on and then a week off and then will do another 5 days starting May 31st (as a nice little birthday present). So I will at least have to do 10 daily treatments, even if I am at zero after the first week. But I may have to do 15 if I'm not at zero after the 2 weeks of treatments.
I am getting the same kind of chemo drug... methotrexate, just in a much lower dose. But I guess the point is that my body is getting the drug more frequently. I also have to still do my weekly blood tests. And on top of it, I have to go to the lab some time this week to get another chest x-ray to see if it has spread to my lungs. Blah... blah... blah.
These past couple of weeks have gotten really hard. The first 5 or 6 tests I was really okay with it all. I mean it wasn't fun, but I knew it had to end some day, right?!!! But, it's just so hard to always worry about a babysitter... and people here have been so helpful, but the past few weeks I just ended up taking my kids. And that seems to trigger some rule of the universe that everything has to happen slower. I used to go to the lab in the mornings, but I have been getting a lot of colds and haven't been wanting to get up at 6:30am.
I got so frustrated that I ended up even complaining to both the lab people and the chemo people! It has been ridiculous! The first few times I went to get my chemo shot, they had the shot all ready when I got there, so it didn't take long at all. But, then... it's like they got lazy. And there are always about 7-8 women just standing around and I'd show up at my
scheduled appointment, and they'd say something like... 'oh, your here... we'll call down for them to get your shot ready.' And then, I've had to wait an hour or even an hour and a half to get my shot!!!! And it seemed to always be the time that I had the kids! And last week, my dr. forgot again to schedule me on my regular Wednesday slot (which is a day that I don't watch Annelyse.), and I had to do it on Thursday, when I had all 3 kids!
Well, that did it for me... I walked in with all 3 kids and when they told me I had to re-register and they would get the shot up, I finally just started crying in front of them. And expressed my frustration. Well, they sure hurried that time!!! It only took about 15 minutes to get the shot up there! Amazing how you have lose all of your mind and all of your patience just to get people to do their jobs! The same thing happened at the lab. After, I expressed my frustration of unexplained slowness, they got me in within 5-10 minutes!
Well, this is getting long. I just hope that my little temper tantrums have made an impression and my daily tests don't take an hour each. The drive itself is 30 min. there and 30 min. back. I am just so thankful for the offers of help I have already received. And last night, G surprised me with a DQ blizzard. He is the nicest. I know that God is watching out for me still during this time.